Seeing the patient as a data generator, making them a participant in medical research, can improve aspects such as recruitment for clinical trials, the success of studies, their own monitoring or their own empowerment. This is the objective of Evidenze, a company specialized in health knowledge management, through the innovative Patient Centric Data Solutions method, which is already applied in Europe.
Barcelona, April 18, 2023.- April 18 is the European Day of Patients’ Rights. Patients who are increasingly digital and who can play an essential role in the development of their own treatment. “New technological devices generate enormous amounts of data that can be analyzed to provide personalized clinical or medical care,” explains Pedro Hernández, Global Director of Clinical Research at Evidenze, “today we can say that we have digital patients: they are data generators, without age limits and in all sectors”. The method used to achieve this new relationship is called Patient Centric Data Solutions, it is a pioneer in Europe and consists of taking advantage of the digital footprint of people for different needs of the health system, such as tests, specific campaigns or recruitments. A system that restores the role of the patient through the analysis of data from their activity on the network, for the benefit, above all, of medical research. Including the perspective of patients in medical research When they talk about Patient Centric Data Solutions, at Evidenze they are based on the transformation of the sector towards the digital age. “We have more information than ever, more knowledge and, at the same time, more tools to understand a disease. But that also requires professionals to take into account the opinion of patients in decision-making”, explains the Global Director of Clinical Evidence Research. Among the advantages of the Patient Centric Data Solutions method is that of facilitating Patient Recruitment. In fact, it is estimated that 85% of the studies are delayed due to the obstacles that are in the way. An example of how accepting the transfer of data for health purposes serves to expedite this type of recruitment is HUGO, a digital intelligence application developed to analyze patterns in Multiple Sclerosis patients. “Thanks to access to their digital life, with this innovative methodology we were able to double the number of candidates in less time because we were able to publicize it among really interested people,” explains Hernández. In total, of the 2,000 patients required to carry out a pilot test, more than 5,000 were achieved. There are other objectives in the transfer of health data, such as improving Patient Listening, which is used to listen and thus better detect and understand how improves the relationship with the health system. In second place is Patient Empowerment, which is based on the empowerment of the patient by being able to offer them information that is really useful, taking into account their real situation. And finally, Patient Support, that is, the accompaniment that the new digital tools can offer both to the patient and to her environment, through applications that respond to her needs in real time. “The industry is advancing towards increasingly personalized therapies and needs to incorporate the patient’s perspective in the development of new treatments,” says Hernández.An innovative method that Evidenze is already promoting in Europe The method follows four steps: the analysis of the population through their pathologies, the identification of key elements of communication with the patient and, subsequently, the preparation of a specific campaign and its subsequent launch. “15-40% of patients drop out of the studies after inclusion due to lack of interest. If we base ourselves on their digital life, we will surely locate people who are really interested in being part of that study in less time,” explains Hernández. The digital era is changing the way we search for information and that also leads us to design new ways of working. We can turn the patient into an ally capable of generating health data that will revert to their own benefit,” he concludes. Issuer: Evidenze
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